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Debora Hugentobler

Rare disease, awaiting a diagnosis: a baby is being held by its parents
A close-up of the baby lying in its mother and father’s arms
Family
6 min

Rare disease: The long wait for a diagnosis

Our columnist's child suffers from a rare disease. After a long wait for a diagnosis, she is finally taken seriously by a geneticist.

Daughter with an N-sensor: mother and a friend are leaning over the pram
Friends meeting up in town
Family life
4 min

If the child's nasogastric tube causes a reaction

Our new columnist talks about everyday family life with her daughter, who is fed via a feeding tube, and how to deal with being visibly different.

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